Nick had an ok day. The steroids maybe helping with some of the inflammation. He seemed to be able to move his legs better today. The pain does seem a little better...so praise for answered prayers! I had said last night the report we received from the on-call doctor was a preliminary reading, after a more in depth review more tumors have been identified:
Two in the lower lumbar, (L-2&3) , one in the cervical, (C-7) one in the thoracic(T-12) one on the hip, and a re-occurring on the thoracic (T-1), by re-occurring they mean the tumor that has been there looks like it is growing, a total of six. It explains all the pain Nick is in.
So where do we go from here? We met with the pain management team and they will work closely with Palliative care . There main goal is to keep Nick as pain free as possible. We also saw the on-call oncologist today who works with our oncologist Dr. Dyer. He will ordering a brain scan since one of new tumors is in the neck/shoulder area, also an MRI of the mid back.
Next we will meet with radiology oncology to talk about which tumors will get radiation. Typically they will only give radiation to the tumors that are creating pressure/pain. We will also meet with Dr. Shannon (Palliative) to discuss our Hospice options when Nick comes home.
This is all maintenance to keep him comfortable and have as much quality in his life as possible. He is eating, and in between dosing off, he will talk some. I told him today we are fighting, they will give us our orders and we will do as we are told. He told me I am way to competitive lol! Just fighting for the one I love. Thank goodness my Heavenly Father fights for me everyday.
During the times Nick slept today and it was quite in the room I would look at him and the tears would just flow. The emotional pain grips me and I have to cling to The Holy One who gives me comfort, peace and hope. It will be the ONLY way to survive this.
But blessed is the one who trusts in the LORD, whose confidence is in him. They will be like a tree planted by the water that sends out its roots by the stream. It does not fear when heat comes; its leaves are always green. It has no worries in a year of drought and never fails to bear fruit.” Jeremiah 17:7-8
We look forward to meeting with our "regular" doctors tomorrow, the ones who know us and Nick's medical history. I will update post as I receive more information.
Thank you for refreshing our spirits everyday with your prayers, love and words of encouragement.
Leaning on His Everlasting Arms,