Psalm 33:20 We wait in hope for the LORD; he is our help and our shield.
It seems like it has been a while since the last update. Since coming off the chemo Nick has been doing better. It took him a while to regain some of his strength and appetite back. He is functioning a lot better.The quality is coming back to his daily life and he has not looked back once on that decision.
We had a several appointments over the last two days at Mayo. The first with Dr. Pirris (neuro) to discuss latest CT scan. Unfortunately, it showed no bone fusion at all, which means Nick will have to wear the brace for a very long time (indefinitely). Of course this upset him. Those of you who know him well, knows he despises that brace. But it is critical for his spine to heal, so he will continue to wear it 24/7.
Our last appointment with Dr. Ko (Rad. Onc.) who was filling in for Dr. Snead, was to discuss the results of the latest MRI and possible additional radiation. There has been no change in the tumor (which I think is good news for now, but eventually it will start growing again) and NO more radiation will be done on that tumor, his spine could not take it. The tumor is to close to spinal cord and could cause paralysis. So really nothing has changed.
Really friends we heard the same things we have heard before, just by a different doctor. We are in this wait and pray stage. We wait to see what will happen next. Now would be a great time for that miracle!!! Barring any additional symptoms that could come up, they will continue to do CT scans every 3 months. We will also continue with palliative care.
It is all about living now!!! Living that quality life, taking advantage of every minute of every day and thanking the Lord for that time, taking nothing for granted, knowing everyday is a gift, and asking the Holy Spirit to help us see things from God's perspective. Praying for a deeper and more eternal relationship with our Heavenly Father than ever before. We will continue to let God fight this battle, as He has done so lovingly and merciful already.
Nehemiah 9:31 But in your great mercy you did not put an end to them or abandon them, for you are a gracious and merciful God.
I remember times in my life when I would say "things just aren't happening fast enough", now there are days I pray for time to stand still so I can relish in the moments of joy and peace with my husband and son. Even in the midst of this fierce storm , I know how blessed I truly am, because I am a child of God. I feel so humbled and privileged to be a witness for the Glory of His Kingdom. I will continue to pray that through Nick's illness people will see the power of the Lord!!
We continue to pray and trust for a miracle, and we hold on firmly to hope. God will never fail us.
Isaiah 58:11 The LORD will guide you always; he will satisfy your needs in a sun-scorched land and will strengthen your frame. You will be like a well-watered garden, like a spring whose waters never fail.
Your prayers and love are a constant source of comfort to us. He has placed each of you on this journey to walk hand in hand with us and we are so thankful to our sweet Lord for you all.
To God be ALL the Glory,